BLUES GET BEHIND LULU APPEAL

Bedford Blues players Will Hooley, Dean Adamson, Chris Czekaj and Oli Curry paid a very special visit to a young fan this week to put a smile on her face and encourage others to support a campaign which could save her life.

Five year old Lulu de Vries is an incredibly happy little girl who is also fighting one of the biggest battles imaginable. In January 2018, just months after starting school, Lulu was diagnosed with high-risk neuroblastoma which has now spread to her bones, bone marrow and lymphatic system.

She started chemotherapy straight away and this was followed by stem cell harvest, high dose chemotherapy, radiotherapy and now immunotherapy. Thankfully, Lulu is responding really well to the treatment but the chance of a relapse is high.

Now, Lulu’s family have created Lulu’s Fight, an appeal to get the funding needed for Lulu to access treatment in New York, that could help reduce her chance of a relapse.

Her parents, Rob and Clare are trying to raise £162,000 by July, in the hope Lulu will be in remission at the end of immunotherapy and able to access the treatment.

Speaking to Bedford Independent, Lulu’s dad Rob said: “The amount is daunting but we can’t put a price on our little girl’s life. She has been so brave, she is our little hero. Please help if you can so we can potentially save our daughter’s life and prevent a relapse.

“Lulu’s school, Great Denham Primary, have been very supportive in helping Lulu. They’re even organising a pyjama day on 8 February.”

While the final total may be daunting, money is slowly coming in, thanks to a series of fundraising events organised by Rob and Clare and their friends, family, and Lulu’s School – with many of Lulu’s friends joining in too.

“The pyjama day is because when Lulu has treatment at Addenbrookes she attends their onsite school in her pyjamas. Her friends at school heard about this and now want to go to school in their pyjamas too.

“The headteacher at Great Denham has also asked if other schools across Bedford Borough would like to take part, emailing all heads to see if they can do the same.”

Other events include a Spring Ball, Rugby matches and the New Zealand All Blacks even donating a signed shirt and ball for the family to put into a charity auction. Rob is also planning a ’12 marathons in 12 cities walk too’.

Dominic Fraser, Bedford Blues Head of Community, who arranged the visit said: “As soon as Lulu’s parents contacted us we wanted to help out. Lulu has a huge journey ahead of her, but we were delighted to come along and pay her a visit and have a little fun. She’s a wonderful little girl whose smile lights up any room and I really hope that this appeal can get the support it deserves.”

If you’d like to find out more about Lulu’s Fight, how to donate to the appeal or take part in any of the fundraising activities taking place, head to: www.facebook.com/Lulusfight/. You can also make a donation by texting LUDV99 and your amount from £1 to £10 to 70070.

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